Category: Medical

 

People bring all kinds of stuff to the gym when they work out — water bottles, headphones, yoga mats.

The boxers at the Rock Steady Boxing class for those with Parkinson’s are notable for what they don’t bring: their canes. Many of them have made such great progress, they can walk into the gym without them.

Since April is Parkinson’s Awareness Month, I talked to Tammy Smith, a volunteer and co-founder of the Rock Steady Harrisburg Boxing program, held at the West Shore Academy of Martial Arts (WSAMA), right around the corner from the Varsity offices. The program is one of 775 affiliates in the national Rock Steady program, a revolutionary boxing training designed especially for people with Parkinson’s.

The program is driven by a team of volunteers and certified Rock Steady Boxing coaches, including the owner of WSAMA, who are passionate about helping to improve the lives of those living with Parkinson’s disease.

The coaches are proud that many boxers in the early stages of Parkinson’s have improved their balance so much through the program that they are able to walk in without the use of a cane. And, unlike many people who sign up for a gym membership and quit a few weeks later, these boxers have nearly perfect attendance. “They don’t miss a class unless they have a serious reason,” said Smith. “They are literally fighting for their lives.”

She goes on to describe the Rock Steady training. “Boxers do a lot of vocal exercises — the coach has them yell out — which combats the issue of their voices tending to get slow and soft. They do a lot of floor exercises, and they also practice falling. If you have Parkinson’s, you have to be comfortable going to the floor because of balance issues. Our coaches teach them how to fall properly and how to get off the floor if they’ve fallen, as well as how to get off a chair — things that you and I may take for granted.”

The program opened its doors in October 2018, and the results have been phenomenal. “We’ve had a tremendous response,” Smith said. In a few short months, boxers’ accomplishments have included decreasing some of their medications, reducing tremors — especially during certain times of the day — and improving coordination and reaction time. “One boxer was thrilled that he can now put his foot on a chair and tie his shoe,” Smith said.

Then, there are the emotional wins. “The coaches are reporting that people who are close to the boxers have noticed a lot of changes in mood and attitude,” said Smith. “They are no longer embarrassed about their symptoms, which used to make them withdraw. In the class they all have similar symptoms, so they can really be themselves and laugh and let loose. Rock Steady brings them together, motivates them and helps with energy and mobility — it’s a win-win,” she said.

“There’s no cure for Parkinson’s,” she went on. “Rock Steady Boxing can improve quality of life and, in some cases, delay the symptoms of Parkinson’s disease. I think people are starting to understand that if you want to fight back against it, this is what you have to do.”

The reason Smith pursued Rock Steady Boxing was her father, who has had Parkinson’s disease for over two decades. “For years, we struggled with any sort of resources for Parkinson’s disease in the area,” Smith said. “It was a huge goal of mine to get Rock Steady Boxing up and going, so I traveled to Indianapolis to become a certified coach and bring home the Rock Steady Harrisburg affiliation.”

Chief and Master Instructor Vince Vergara of the West Shore Academy of Martial Arts and one of his coaches, Allyson Halbach, heard through the grapevine that Smith was already certified and held an affiliation and was looking to sponsor a program for her business— so, the two parties came together.

They began with classes for people in the early stages of Parkinson’s and now have opened classes for people with more advanced symptoms. The program is growing rapidly, partly from physician referrals. Class fees are low and go right back into the program. “Anyone that is thinking about taking a class is welcome to come and observe,” Smith said.

Smith is also involved with the Parkinson’s Foundation, speaks about the benefits of Rock Steady and organizes Parkinson’s-related resources and fundraising events in the area, one of which is the 2nd Annual Knockout PD 5K. She invites everyone to come out to the event on Saturday, April 13, at Masonic Village in Elizabethtown. Learn more about the race here.

 

 

 

Eaton Senior Communities is home to 164 residents and, occasionally, a socially assistive robot called Ryan, now being developed at the University of Denver. In a series of posts, I’m talking to people involved in this fascinating project and getting their perspectives on how this lifelike “companionbot” could benefit seniors living with depression and dementia.

Today, Sarah Schoeder, wellness director at Eaton Senior Communities, shares some of her favorite stories about resident interactions with Ryan.

DW’s Story: Reengaging in the Community

DW struggled with depression after the loss of his wife earlier this year. We no longer saw him smile, and he had begun to isolate, no longer taking meals in our dining room or attending holiday parties. At 93, he had limited access to technology in his lifetime — and certainly not to a robot! What transpired was the old DW returning to us. He smiled and laughed again and was always on time, never missing a session. His daughter was thrilled that her dad was once again engaging in the community, and it lessened the stress she felt when she was away on business. DW will tell you that it “was fun” and that “Ryan helped take my mind off the constant thoughts of my wife. It gave my mind a new direction, you might say,” he said. He felt valued, helping the interns achieve their goals and receiving the opportunity to engage with younger adults.

LW’s Story: Overcoming Depression

LW was another unexpected success. As a younger resident with a higher level of education, I was not sure what to expect. She surprised me when she said that “Ryan understands me; she knows what I am going to say before I do.” LW struggled with depression that was intensified by her recent move to the community. Over the course of the trials, she began to report that moving here had improved her mood, and she looked forward to her sessions with Ryan. She is anxious to further participate in clinical trials and recognizes that Ryan helped her overcome the deep depression she felt earlier this year. I am happy to say that she is now an active community member, participating in many social events and helping her neighbor regain her love of art.

PN’s Story: Making a Friend

PN was thrilled when invited to participate with Ryan. He frequently commented on how beautiful her smile and facial features were. He recalls how he asked her out to dinner, but she declined, saying she was not hungry! PN commented on the variations in facial expressions and quality of speech. He was aware of these features and how it affected his relationship with her. PN looked forward to his interaction with Ryan, and the excitement that followed after his sessions was priceless!

BC’s Story: Seeing His Dream Come True

This resident had studied psychology in the 1950s and had particularly enjoyed the area of artificial intelligence. In his 90s, and highly educated, BC enjoyed seeing the “future” that, years earlier, he could only dream of. After his sessions, he would smile and talk at length about the interactions. It was great to see his mind stimulated and the smile he was well known for return when his health was failing him.

See Ryan from her inventor’s perspective in another blog.

 

 

 

Eaton Senior Communities is home to 164 residents and, occasionally, a breakthrough, socially assistive robot called Ryan — created at the University of Denver — which could soon be available to the general public. In a series of posts, I’m talking to people involved in this fascinating project and getting their perspectives on how this lifelike “companionbot” is helping older adults who are living with depression and dementia.

Today, I’m speaking with Sarah Schoeder, wellness director at Eaton Senior Communities, who is a liaison between the residents and the team of scientists developing Ryan. Sarah has been serving the geriatric community for 38 years, including 20 years as an LPN in a skilled nursing facility.

 

Wayne: Sarah, what was it like trying to get residents to participate in the robot pilot studies?

Sarah: I would visit them and drop this idea in their lap, and they’d look at me like I was crazy. I’ve approached a lot of residents whom I didn’t expect to get involved — some of them in their 90s. To see them go from giving me a look like, “You’re kidding me” to becoming excited, looking forward to the sessions and wanting to be involved in the next set of trials, it’s been amazing.

 

Wayne: Did the residents have input about the changes in the robot?

Sarah: Yes, residents would give feedback about what they’d like the robot to look like and sound like — what they’d like it to say. Then, the team would make changes.

 

Wayne: How has the robot changed over time?

Sarah: Ryan’s facial features appear more natural, and the improvement in the movement of her head has given her a “softer touch.” Her smile is beautiful, and she makes me want to smile back!

 

Wayne: Were you concerned that residents might not want to finish the project?

Sarah: Yes, but all residents in both trials of 2018 completed all sessions, which spoke highly of the project goals. Some residents were hesitant and perhaps a little fearful, but after spending time with Ryan, their attitudes completely changed. Ryan has touched the lives of Eaton residents by providing unconditional companionship and interest in their lives. The improvement in mood and cognition was apparent as residents were exposed to educational opportunities and stimulating interactions.

 

Wayne: Does Ryan have a sense of humor?

Sarah: Yes! I’ll give you an example. One resident who was hosting Ryan in her room was walking down the hall, and she said to me, “Can you believe what that crazy thing just said to me?” She went on to say that she and Ryan were talking about how the Denver Broncos were competing against the Patriots in the Super Bowl, and Ryan announced that she was a Patriots fan — in the heart of Bronco country!

 

Wayne: How will this new technology help people age in place?

Sarah: One of the biggest reasons people move into assisted living is that they can’t manage their medicines. If Ryan reminds me to take my medicine, that might be the defining moment that keeps me home.

 

Wayne: How has this experience changed your views on robotics?

Sarah: If someone told me five years ago that I’d be sitting here telling you robots could be valued members of a health care team — that I’d be endorsing them as part of the health care model — I would not have believed it, but I’ve learned that the robot is not replacing me as a nurse and caregiver. It’s just empowering me to be more successful in senior living.

 

Sarah will share stories about resident interactions with Ryan in next week’s blog. 

Soon, older adults will have access to a breakthrough new tool to improve their quality of life. Mohammad Mahoor, PhD, director of the computer vision and social robotics laboratory at the University of Denver, has spent the last decade working with his students to create and refine an amazingly lifelike, socially assistive robot named Ryan, which can provide deep social interaction and companionship to people living alone.

Designed to address challenges of aging — like dementia, depression and loneliness — this “companionbot” can recognize faces and emotions, express feelings, hold conversations and remember individual comments for future interactions to build a relationship over time. Ryan’s face is expressive and lifelike; she can turn her head to react to voices and movement, and her torso contains a screen for playing music and games, watching videos, looking at photos and doing other activities. Ryan’s next iteration will also have active arms so she can coach people in light exercises to improve their physical fitness.

In a pilot study, six residents at Eaton Senior Communities in Lakewood, Colorado, had 24/7 access to Ryan in their apartments for a period of 4–6 weeks. Ryan was customized for each participant, with photos for an album, daily schedules, favorite music and topics of interest for YouTube video searches. Participants could call Ryan by the name of their choice.

Observations, interviews and analyses revealed that the residents established rapport with the robot and greatly valued and enjoyed having a companionbot in their apartment. They also believed that the robot helped them maintain their schedule, improved their mood and stimulated them mentally. One user shared that, “She [Ryan] was just enjoyable. We were SAD to see her go.”

After the staff at Eaton Senior Communities told me how thrilled the residents were with their experiences with Ryan, I spoke with Dr. Mahoor about his invention.

 

 Wayne: Why did you create Ryan?

Dr. Mahoor: We wanted to address the needs of older people living with dementia, loneliness and depression. There is a shortage of caregivers, and care is expensive — Ryan is a great form of companionship. She can help seniors lead better lives at home.

 

Wayne: Can you talk about the testing process?

Dr. Mahoor: The first round of testing, in 2016, was a six-month, piloted study at Eaton Senior Communities. All of the features were not ready, the cognitive games were simple, and the speech recognition had some glitches — but we received very positive feedback. After making changes, we did two more pilot studies this year. One focused on how Ryan can help people with dementia through cognitive behavioral therapy. The second pilot study was totally autonomous. Users had half an hour of interaction with Ryan for 3–4 weeks to test the emotion recognition technology.

 

Wayne: Were there any surprises when people first began interacting with Ryan?

Dr. Mahoor: At first, we had a fear that people wouldn’t like Ryan. But even in the early stages, they reacted very positively. We noticed that the more time they spent talking with Ryan, the more they enjoyed it, and they wanted her to tell them more stories and jokes — even gossip! When we took the robot away from one of the residents, he literally cried. The bond was so strong that he was very sad. It was really surprising for me that a robot could make such a huge impact on people’s lives. I didn’t expect that much of a connection between machine and human.

 

Wayne: What challenges did you face when test-driving Ryan?
Dr. Mahoor: One of the challenges is that you have to be patient because multiple people cannot talk to Ryan at the same time — you have to take your turn so that she can listen and understand you.

 

Wayne: What kinds of results have you had?

Dr. Mahoor: When we measured mood and depression before, during and after phase one of our study, we found that Ryan significantly improved users’ moods and lessened their depression.

 

Wayne: What’s next for Ryan?

Dr. Mahoor: We received a National Institutes of Health (NIH) grant for phase one, and now we are in transition to phase two. NIH has approved our next grant from a scientific perspective. Now it just needs to approve the budget. Phase two would be a grant of over a million dollars to help us study Ryan’s impact on the progression of dementia.

 

Wayne: How unique is Ryan?

Dr. Mahoor: There are other robots out there, but this is the first one developed with features customized to help with depression and dementia through social conversations, games and other interactions.

 

Wayne: When will Ryan be available on the market?

Dr. Mahoor: We are very close; I’m hoping by the end of the year. We’ve started working with investors to begin production. Users love Ryan, the feedback has been positive, and we’ve made improvements. It’s time to go to market to fulfill our mission of helping the health care industry.

 

Wayne: How much will she cost?

Dr. Mahoor: Manufacturing each Ryan costs thousands, so to make her more cost-effective, we have a subscription-leasing plan in mind. The cost would be about $400 per month for individuals, but if a corporation wanted to lease multiple Ryans, the rate would adjust. One Ryan can be reprogrammed to serve multiple residents.

 

Wayne: What would you say to people who worry that robots will take over the world?

Dr. Mahoor: Ryan is going to complement the time and support of caregivers and help make their lives easier — not take over and replace them.

 

Wayne: Are you surprised at where you are today?

Dr. Mahoor: Yes. When we first started several years ago, I didn’t think we’d be in a position to commercialize the invention; I didn’t think we’d be a startup meeting with investors. I’m so happy about our progress. For us to be in a position to bring a robot to market that’s going to improve health care and impact people’s lives for the better is amazing.

 

Learn more about Dr. Mahoor’s companionbot, Ryan, at Dreamfacetech.com.

 

 

Last year, a piece I wrote regarding substance use and abuse in the senior population was published at McKnight’s Senior Living.

The response was so overwhelming that we’ve continued the dialogue with a second McKnight’s Senior Living article, with hopes that further conversations will be inspired around this growing challenge for older adults. To read it, click here.

 

 

 

 

As we head into 2019, we look back on an exciting year for the Varsity blog! Here’s a countdown of our most popular posts for 2018. It’s a potpourri of topics, from serious to humorous to touching. One common thread: innovative ways of helping people age well, from a world-renowned village for people experiencing dementia to LEGOs.

5. Older Adults Experiencing Homelessness Inspired by an experience our president Wayne Langley had passing an underpass in Los Angeles, this three-part series provides insights into how older individuals experiencing homelessness are treated. Read the first installment here.

4. Difficulties in Diagnosing Parkinson’s Disease  In this guest post, Rebecca Evans of geriatric nursing.org discusses the second most common age-related disease after Alzheimer’s, including the lack of a precise screening test and why early diagnosis is so important. Read it here.

3. Remembering Sal J. Molite, Jr.  Derek Dunham, vice president of client services at Varsity, pays his respects to Sal J. Molite, Jr., former president of Edenwald Communities in Towson, Maryland, who sadly passed away in January 2018. He was a true friend and colleague, who had a passion and dedication for the aging services. Read the post.

2. American Hogeweyk — an Interview with UMC’s Larry Carlson Varsity spoke with Larry Carlson, President and CEO of United Methodist Communities, on his fascinating experience visiting Hogeweyk, the world-famous memory support community in The Netherlands. Read the post.

1. Playing with LEGOs Could Help Older Adults Our most-read post of the year came from Robinson Smith, Varsity creative director and lover of all toys and games. Rob discusses Adult Fans of Legos (AFOLS), many of whom are older adults who use Legos to engage in a creative exercise for the mind. Read the post.

That’s our countdown of top posts for 2018! Stay tuned for more fresh perspectives in 2019, and please ">contact us  if there’s a topic or issue you’d like us to cover.

 

Wouldn’t you like to know on which day of the week residents exercise most? In what weather they exercise least? Where staff and residents interact most on campus? The answers to these and other questions were revealed in a LeadingAge Annual Meeting & Expo session on data’s link to wellness. Missed it? Watch the video to hear residents and leaders share how big data makes a big difference in well-being.

The video kicked off “Linking Data to Wellness, a Personalized Approach to Well-being,” presented by John Bassounas, Partner, Varsity; Kevin Purcell, Chief Data Scientist, Varsity; and Justin Margut, Wellness Manager, Bethany Village Retirement Community.

The session revealed three important things data analysis can tell you about wellness:

1. The movement of behavior and trends among your residents at all levels of care
2. How residents use the resources and facilities within a community
3. Patterns of interaction between staff and residents along the continuum of care

For the rest of the session’s insights, contact us for an in-person presentation.

It’s Movember, which means that men all over the world are growing mos (moustaches) to raise awareness of men’s health issues. As the moustachery draws to a close, other traditions are sprouting: Black Friday, Cyber Monday and Giving Tuesday.

How can Giving Tuesday organizers turn Boomer attention away from doorbusters and toward donations? One way is to take a page from the Movember playbook and target Millennials. Although this generation doesn’t yet have the financial firepower of Boomers, it can be the match that ignites the flame of Boomer giving.

“Younger generations are more inclined to get behind the cause because it’s an easy way to have fun while doing good, and the Movember brand is very indicative of that,” said a Movember representative. “This definitely sparks interest from older generations, who in turn are intrigued and want to learn more.” With support from all generations, the Movember movement has raised more than $710 million in 21 countries to fight conditions such as prostate cancer.

What style mo do Boomers like to sport? “A lot of older men like to exude sophistication with their moustaches,” said a Movember representative, “so The Boxcar and The Connoisseur are usually their go-tos.” Learn more about Movember, and check out the moustache style guide here.

Researchers are testing a new treatment that could prevent Alzheimers’ many years before any memory loss occurs. How does the one-of-a-kind drug work? By destroying the build-up of amyloids, proteins produced in the brain that can form deposits that cause memory loss.

Scientists believe that the study offers new hope for Alzheimers’, because it is the first trial of a drug designed to prevent memory loss, not just treat it. The study is called Anti-Amyloid Treatment in Asymptomatic Alzheimer’s (A4 for short).

Want to protect yourself and the people you love from Alzheimer’s? Join the A4 study. Researchers are looking for healthy people between the ages of 65-85 to participate. To find out if you are eligible, visit the A4 website or call 1-844-A4STUDY. As the study’s slogan says, “Now is the time.”

Medical expenses are the leading cause of bankruptcy in the U.S. As the Boomer generation hits retirement age, paying for healthcare will only get more challenging. So what’s the solution?

 

Some people turn to crowdfunding to fill in the gaps that Medicare and Social Security leave. The medical category is growing exponentially on sites like GoFundMe. According to a recent article in Time, “Medical, Illness and Healing” is GoFundMe’s most popular section, bringing in 26% of all donations. In 2014, it helped raise $147 million for medical costs, up from $6 million in 2012.

Crowdfunding does have drawbacks, especially for members of the 65 and over crowd, who often suffer from common chronic conditions of aging, not exotic diseases. According to a 2014 Georgia Tech study, showing that a condition is rare or unique drives people to donate. And in a New York Times story, a healthcare expert said, “The need for geriatric care is so far and wide that it’s hard to draw out interest.”

Some families with older relatives, having run out of options, feel they have no other choice but to ask for donations via crowdfunding. But what’s it like to be on the receiving end of these heartfelt electronic pleas? ?

In one case we know of, an entire group of extended family and friends received emails with a link to a crowdfunding site. One branch of the family was facing major financial expenses for their father, an elderly man with serious health issues. Because the father’s healthcare expenses had decimated his funds, his children felt they had no other option but to ask for contributions through the crowdfunding site. They plan to care for their father at home, and part of the donated money will go toward making the house wheelchair accessible.

Upon receiving the emails, the potential donors felt sympathetic to the situation, knowing how difficult it was for the man’s children to reach out. Still, the request caused a few ripples of controversy, as many of the family and friends were dealing with their own serious financial challenges. They pulled together and raised some money, but the man’s children are still short of their goal.

That’s not uncommon. Although some people are lucky enough to raise thousands of dollars through crowdfunding, most campaigns do not go viral and most pledges come from the user’s personal network of family and friends. The average amount raised at GoFundMe is just $1,126. Then, there are taxes to deal with, the site fee and the risk that the insurance company will deduct the amount received from its part of the payment.

For many people, crowdfunding is not a magic bullet. But, with hundreds of sites out there and more popping up all the time, it looks like it’s here to stay.

As healthcare expenses keep rising as our population ages, it seems that our inboxes may not only be clogged with medical bills, but with crowdfunding appeals.