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As we head into 2019, we look back on an exciting year for the Varsity blog! Here’s a countdown of our most popular posts for 2018. It’s a potpourri of topics, from serious to humorous to touching. One common thread: innovative ways of helping people age well, from a world-renowned village for people experiencing dementia to LEGOs.

  1. Older Adults Experiencing Homelessness Inspired by an experience our president Wayne Langley had passing an underpass in Los Angeles, this three-part series provides insights into how older individuals experiencing homelessness are treated. Read the first installment here.
  1. Difficulties in Diagnosing Parkinson’s Disease  In this guest post, Rebecca Evans of geriatric nursing.org discusses the second most common age-related disease after Alzheimer’s, including the lack of a precise screening test and why early diagnosis is so important. Read it here.
  1. Remembering Sal J. Molite, Jr.  Derek Dunham, vice president of client services at Varsity, pays his respects to Sal J. Molite, Jr., former president of Edenwald Communities in Towson, Maryland, who sadly passed away in January 2018. He was a true friend and colleague, who had a passion and dedication for the aging services. Read the post.
  1. American Hogeweyk — an Interview with UMC’s Larry Carlson Varsity spoke with Larry Carlson, President and CEO of United Methodist Communities, on his fascinating experience visiting Hogeweyk, the world-famous memory support community in The Netherlands. Read the post.
  1. Playing with LEGOs Could Help Older Adults Our most-read post of the year came from Robinson Smith, Varsity creative director and lover of all toys and games. Rob discusses Adult Fans of Legos (AFOLS), many of whom are older adults who use Legos to engage in a creative exercise for the mind. Read the post.

That’s our countdown of top posts for 2018! Stay tuned for more fresh perspectives in 2019, and please ">contact us  if there’s a topic or issue you’d like us to cover.

 

Today, nearly six million Americans have been diagnosed with Alzheimer’s disease. By the year 2050, that number is expected to double. Beyond that statistic are several million more people who have been assigned another kind of dementia diagnosis. The reality is that nearly every American, at some point in his or her life, is going to have a friend or family member afflicted by a chronic neurodegenerative disease. As a society, we have struggled to understand and cope with these diagnoses. Symptoms often start small, building to a critical level that alienates people from their loved ones through a mental fugue from which they cannot escape.

Most Americans gain their initial understanding of these illnesses through popular culture. As early as 1949, the character Willy Loman displays signs of dementia in the play “Death of a Salesman.” By the 1980s, several films used dementia symptoms as key plot points, as writers and directors explored the family dynamics and challenges that occur as dementia progresses. Since the year 2000, we’ve seen an explosion of documentaries, movies, books and other works that have chronicled the onset of dementia symptoms — both from a first-person account and through the eyes of loved ones. Today, one of Broadway’s most popular shows is “The Waverly Gallery,” a wrenching production that follows Gladys Green as her mind slowly fades while her body continues to struggle on.

In that trying moment, when a family is first faced with a dementia diagnosis, these portrayals are often the first thing that comes to mind. Loved ones conjure up the worst moments of the illness as portrayed in the cultural zeitgeist, leading them to believe that only desperation and sadness lie on the path ahead — except, that’s not really the case.

Generally, Alzheimer’s is first recognized because an individual is experiencing some kind of cognitive impairment that impacts his or her daily life. This means that the disease has already been present for a period of time before being discovered by medical professionals. Following a diagnosis of Alzheimer’s disease, the average person can expect to live an additional three to 10 years. Herein lies the disconnect between popular culture and reality.

Families and friends often have a hard time understanding a diagnosis of dementia because the person may just seem forgetful as he or she ages. The portrayals of the disease in media usually play up the most uncomfortable and sad moments that come with the end of the disease, but a person might be able to live a relatively normal and happy life for several years before true debilitation occurs. This is why it’s so important that dementia be realistically portrayed to audiences.

At Varsity, we often don’t interact directly with individuals who have a dementia diagnosis, but the majority of the team has spent time in communities and with family members who have dementia. As an organization, we recognize the important of portraying the life cycle of a dementia diagnosis in a realistic and relatable way, especially through the marketing and advertising work that we do.

Sometimes, the “fresh perspective” isn’t the one that causes the greatest stir. From our experience, today’s freshest perspective about memory support and dementia is a realistic one that focuses on the life yet to be lived, not the eventual challenges down the road.

 

Sources:

https://www.alz.org/alzheimers-dementia/facts-figures

https://en.wikipedia.org/wiki/Alzheimer%27s_disease_in_the_media

This article is the third in a three-part series, offering a fresh perspective on a topic that aging services providers often overlook older adults experiencing homelessness. For this series, we are interviewing Brother Damien Joseph of the Society of St. Francis. Damien Joseph works with people experiencing homelessness in California and offers some incredible insights.

You can read the first article here.

You can read the second article here.

In our last article, we discussed issues relating to the health of older adults experiencing homelessness. Are aged individuals more likely to seek assistance or less? Is there any discrimination in the services rendered? (Meaning that some shelters prefer to help young, homeless mothers — do they avoid the older population?)

I don’t know if there is a pattern in likelihood to seek assistance. I do know there is a sub-population of “chronically homeless” people, who by virtue of being defined as living on the street long term, are often older. This population is often less likely to seek assistance for a variety of reasons, including sheer weariness of trying to navigate a system of vastly inadequate resources.

Legal protections prevent most shelters from turning away an individual based on age. There are certainly specialized shelters for women with children and so on, but a shelter open to general populations may not consider age. What they MAY and DO consider is degree of medical need. If the shelter decides that a person potentially has more medical, mobility or assistance needs than it can accommodate, it does not have to accept that client. Obviously, older individuals are more likely to have these needs (especially if they’ve been experiencing homelessness) and, therefore, are more likely to be turned down. It’s legally not considered discrimination, but it has the same effect.

Just last week, I was with a group talking with the Episcopal chaplain at a large LA hospital. Looking at his current hospital census, he could quickly identify nine individuals who were admitted to the facility for a treatment lasting a couple of days but had now been there from three to nine months because their age and medical needs made it impossible to find shelter or program housing. This hospital, being a religious institution and committed to care over profit, will not put these individuals out on the street, but it has received no payment from Medicare or any insurer since the first few days of the hospitalization of these nine. Other hospitals would not be willing to take such a hit.

In San Francisco, a chronically homeless woman we knew well arrived at our door one chilly windy evening, barefoot, wearing only sweatpants and a thin T-shirt. She was heavily sedated by antipsychotics. The hospital where she had just been treated for pneumonia had discharged her with a taxi voucher bearing our address. Within half an hour, we had to call EMS again, and she was readmitted to another hospital for further care. If she had not knocked on our door, she might well have died that night.

Do you find that individual people are less likely to help an older person than a younger one?

I’m endlessly bothered by how much “compassion fatigue” I see in our cities. Most people walk past their unsheltered and needy neighbors as if they weren’t there. They don’t make eye contact, don’t speak to them and cross the street, if necessary. If it were possible to help less than “not at all,” then perhaps I could guess whether younger or older people were more likely to be ignored.

Are older homeless people more likely to have been homeless for a long period of their life and have just given up on finding a home? Or do they usually find themselves homeless later in life, through no fault of their own?

One of the most important truths of work with the community experiencing homelessness is that there is no typical story. There are as many stories and as many causes of homelessness as there are individuals experiencing it. It may have been common at one point for most older people living unsheltered to be among the “chronically homeless,” but I meet people in all varieties of situations.

Some have been chronically homeless. Many have been impacted by the ever-increasing cost of living and income gap. In cities like San Francisco and LA, where gentrification is rampant, many have fallen victim to developer greed, as building buyers find legal loopholes in rent control and force people out of places they’ve lived in for decades. Some have lost their retirement income to recent financial crises. Many were among the growing number of Americans whose full-time, honest work never left enough to save for retirement and now find that meager Social Security payments don’t go very far, especially in a city. Some have been made destitute by catastrophic medical problems, the onset of mental illness or addiction. Those who are new to being homeless as a senior are often especially at sea. Trying to navigate the system and compete for drastically insufficient resources is a huge and baffling adjustment. Many are just overwhelmed by it.

As we conclude our series of interviews with Damien Joseph, we must reflect on what we, as individuals and as organizations, are doing to help older adults that are at risk for homelessness. Each of our organizations can do something.

At Varsity, we’ve made a contribution to the Society of St. Francis to assist Damien Joseph with his ongoing ministry. If you’re interested in learning more about the work of the Society of St. Francis, you can visit the website at www.s-s-f.org.

If you’d like to make a donation to help the Society’s work, you can do so at http://www.s-s-f.org/give . There, you’ll find information about sending a check by mail or making an online donation.

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